journal

night hrs

nap hrs

total sleep

temp

glands

sore throat

postnasal drip

back pain

back stiffness

anxiety

decreased hearing

shooting pains; skin sensitivity

facial stiffness/paralysis

dental pain

neck stiffness

neck pain

headache

nausea

joints

clumsy

jerky movements

fatigue

night sweats

sleep dstrbd

excessive sleep

early awakening

weird eye stuff

hair loss

Medication taken & notes on symptoms

Other notes

1=mild; 2=moderate; 3=severe

1=swollen; 2=swollen and stiff; 3 = swollen and painful

Dec 7-10

M and L were visiting, fatigue started then or before. Also around now or before lymph nodes started swelling up each evening, back to normal each morning

April 4 2007

Relapse of tiredness; sore throat worse at night

April 5 2007

April 6 2007

started to be nauseous on 4/5, worse in morning, with pain and weakness and continued muscle pain in back. took ipecac about 4 times, nausea is reduced but other symptoms continue

April 7 2007

had diarrhea all night, but have been well all day, with almost no symptoms besides weakness from lack of food. ate, biked, etc. lymph nodes still slightly swollen

April 10 2007

Had cold symptoms. Seems to have cleared up by evening. Getting more sleep would probably help a lot.

March 16 2007

"Getting back to normal"

May 23 2007

lymph nodes very swollen, have been stressed and not sleeping very long because of worries about work and kavi. Around now I think they stopped getting better in the morning

remainder of May

sinus infection

June 3 2007

mucous finally clear

Twice in late July / early August

had jaw pain. Also sometime in june/july had the flu twice within a single 9 day period

august4th

img 04082007025.jpg -- rash on the back of my neck

August 29 2007

after a 5 day bout of only sleeping 6.5 interrupted hours a day I developed TMJ (frozen jaw). Totel frozen jaw asted about 5 days, ending on the 2nd of September

September 2 2007

frozen jaw mostly cleared up

September 6 2007

starting a day or two after the jaw cleraed up I lost the ability to turn my head side to side. This lasted until 9/9. I also couldn't use my arms or lift kids without pain. Ibuprofin helped. Pain went up and down over this period but neck was pretty locked up the whole time

Septemb 10 2007

frozen neck mostly cleared up, still some pain in shoulders at extreme angles

September 19 2007

had a cold


.	September 27 2007								Y			2.00																					at this point I made a note that lymph nodes no longer drop down to normal even after a good night's sleep
.	September 28 2007																																rash between my legs; sharp shooting pains in left shoulder started a day or so ago
.	October 1 2007																															Arm started improving rapidly, better by end of day
.	remainder of October																																back pain went up and down, had a head cold, occasional painful lymph nodes and always swollen
.			night hrs	nap hrs	total sleep	temp	glands	sore throat	postnasal drip	back pain	back stiffness	anxiety	decreased hearing	shooting pains; skin sensitivity	facial stiffness/paralysis	dental pain	neck stiffness	neck pain	headache	nausea	joints	clumsy	jerky movements	fatigue	night sweats	sleep dstrbd	excessive sleep	early awakening	weird eye stuff	hair loss	Medication taken & notes on symptoms	Other notes
.	Friday Nov 2	Morning
.		Afternoon		1.00	1.00
.		Evening	9.42				2.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	1.00	0.00	2.00	2.00	0.00	0.00	0.00	0.00	0.00	2.00	0.00	0.00	0.00	0.00	0.00	1.00	Ledum 1m
.	Saturday	Morning					1.00	0.00	1.00	1.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	lower back, 3 wakeups (kids); bac]k 2 sleep easily
.		Afternoon		0.75	10.17	96.60
.		Evening				96.30	1.00	0.00	1.00	1.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	1.00	0.00	0.00	0.00	1.00	Ledum 1m, couldn't go to sleep last night..
.	Sunday	Morning	7.00			97.50	1.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00
.		Afternoon			7.00
.		Evening	10.00			96.80	1.00	0.00	1.00	1.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	2.00	0.00	0.00	0.00	0.00	0.00	0.00	Ledum 1m
.	Monday	Morning			10.00	96.00	1.00		1.00				1.00					1.00													sleep was highly disturbed by elena… not me
.		Afternoon
.		Evening	6.00				1.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	clumsiness is increasing
.	Tues	Morning	7.00		13.00	96.30	1.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	1.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	E was up in the middle of the night for an hour our I would have had 7, still too little though
.	Wed	Afternoon		1.00			1.00	0.00	1.00	1.00	0.00	0.00	2.00	0.00	1.00	0.00	1.00	0.00	0.00	1.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	1.00	left knee a little uncomfortable; need to eat not to be nauseous; have elena's head cold; took first dose of antibiotics & 500 mg vit. C
.		Eve	8.00		9.00		2.00	0.00	2.00	0.00	0.00	2.00	2.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	1.00	1.00	0.00	2.00	0.00	0.00	1.00	0.00	0.00	woke up and then back to sleep; clumsy and some jerky movements;


.		Thurs	Morn				1.00	0.00	1.00	0.00	0.00	0.00	2.00	0.00	0.00	0.00	0.00	0.00	0.00	2.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	1.00	antibiotics, 1000 mg vit c; probiotics
.			Eve	8.00	1.00	9.00	1.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	1.00	2.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics, 1000 mg vit c; probiotics; nausea in evening (shrimp)
.		Friday	Morn				1.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	antibiotics, 1000 mg vit c; probiotics
.			Eve	5.50																					1.00						antibiotics, 1000 mg vit c; probiotics
.		Sat	Morn		2.00	7.50														3.00											antibiotics, 1000 mg vit c; probiotics; extreme nausea in morning (took antibiotics before food)
.			Eve	11.00		11.00	2.00	0.00	1.00	1.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics, probiotics
.		Sunday	Morn																												antibiotics, 1000 mg vit c; probiotics
.			Eve	5.00		5.00																									antibiotics, 1000 mg vit c; probiotics
.		Monday	Morn																												antibiotics, 1000 mg vit c; probiotics
.			Eve	8.00																											antibiotics, probiotics
.		Tues	Morn		0.33	8.33																									antibiotics, 1000 mg vit c; probiotics
.			Eve	7.00																											probiotics; IV
.	Wed	14-Nov	Morn		1.00	8.00																									stopped doxy. Tried biking to school -- it was a bad idea. Woozy, had to sit while lecturing in methods
.			Eve				2.00	0.00	1.00	0.00	1.00	0.00	1.00	0.00	1.00	0.00	0.00	1.00	1.00	0.00	1.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	probiotics; IV, vit c 1000 mg; right knee pangs
.	Thurs	15-Nov	Morn
.			Eve	8.00																											antibiotics, probiotics, vit c 1000 mg
.	Fri	16-Nov	Morn		1.00	9.00																									First day I felt healthy enough to bike with kavi to his school, then to work, then home again (since starting the antibiotics)
.			Eve	7.00			1.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	1.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics, probiotics, vit c 1000 mg
.	Sat	17-Nov	Morn		1.00	8.00																									Continued to feel better (as on Friday), nausea is mostly gone. However every day in the past week, I've been feeling ready for a nap by noon. Really tired in other words. Today I spent most of the afternoon napping
.			Eve	7.00			1.00	0.00	1.00	1.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	2.00	0.00	0.00	0.00	0.00	0.00	0.00


.	Sun	18-Nov	Morn		2.00	9.00																		`							felt like I had a cold all day
.			Eve				2.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	1.00	0.00	0.00	0.00	1.00	0.00	2.00	0.00	0.00	0.00	0.00	0.00	0.00	really strong need to nap
.	Mon	19-Nov	Morn																												no nap, probiotics, antibiotics, 1000 mg vit c
.			Eve	8.50				1.00
.	Tues	20-Nov	Morn		2.00	10.50	2.00	0.00	1.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	started to notice I'm feeling better despite lymph nodes and lots of sleep being the same - in particular, a little more range of motion in my neck (side to side) and the strange feeling that maybe my brain's less fuzzy (no way to measure this one)
.			Eve	8.00
.	Wed	21-Nov	Morn			8.00
.			Eve				2.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	1.00	1.00	0.00	0.00	0.00	0.00	2.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics, probiotics, vit c 1000 mg. tired at 6pm for the last few days. Then I get a second wind at 8. Probably better if I just went to bed at 7
.	Thurs	22-Nov	Morn		2.00
.			Eve	10.00															1.00						1.00						antibiotics, probiotics, vit c 1000 mg. tired at 5pm (really from the nap on), headaches.
.	Fri	23-Nov	Morn		1.00	11.00	2.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00
.			Eve	5.00			1.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics, probiotics, vit c 1000 mg. headaches increasing, less tied to tiredness; glands seem swollen more in the morning than before
.	Sat	24-Nov	Morn		0.75	5.75
.			Eve	11.00																											antibiotics, probiotics, vit c 1000 mg
.	Sun	25-Nov	Morn		0.75	11.75
.			Eve	7.50																											antibiotics, probiotics, vit c 1000 mg
.	Mon	26-Nov	Morn		0.75	8.25
.			Eve	8.00			1.00	1.00	1.00	2.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	1.00	2.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	antibiotics, probiotics, vit c 1000 mg; in general I'm feeling sharpish dull pains up and down my lower back, having way more headaches than before
.	Tues	27-Nov	Morn		0.75	8.75						1.00																			spoke with voloski today and he explained again why he thought my treatment should end on the 24th (or sooner). Teary. Did a bunch of research on lyme, still not sure what to do, but pretty sure things won't just resolve immediately whether I continue or stop antibiotics
.			Eve	8.00			1.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	2.00	0.00	0.00	0.00	0.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	antibiotics, probiotics, vit c 1000 mg


.	Wed	28-Nov	Morn		0.75
.			Eve	8.25		8.75																									antibiotics
.	Thurs	29-Nov	Morn		0.75		0.50	0.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00
.			Eve	8.25		9.00																									antibiotics, vit c 1000 mg, massage, probiotics. Started to feel better as of this evening because I figured (with help) out that the antibiotics don't need to change my symptoms to be working. Nap was really rest only
.	Fri	30-Nov	Morn		0.50																										vit c 1000 mg
.			Eve	??		8.75	1.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	0.50	1.00	1.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	vit c 1000 mg, probiotics, antibiotics, in general starting to feel more energetic than thanksgiving weekend, when I was really really sleepy
.	Sat	1-Dec	Morn		0.66																										vit c 1000 mg
.			Eve	9.00																											antibiotics
.	Sun	2-Dec	Morn		1.00																										vit c 1000 mg, probiotics
.			Eve	7.00		10.00	1.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	vit c 1000 mg, probiotics, antibiotics, saw the lymph node masseuse today, have normal range of motion in neck, some head aches, otherwise no major changes.
.	Mon	3-Dec	Morn		0.66																								1.00		vit c
.			Eve	8.50		7.66	1.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	vit c, 1000 mg, probiotics, antibiotics
.	Tues	4-Dec	Morn		1.00																											memory: anind said something about not being home for dinner and did we have planned food, and I have no recollection of the first part of what he said
.			Eve	5.00		9.50	0.50	0.00	0.50	1.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	vit c, 1000 mg, probiotics, antibiotics. last week, I had major light sensitivity. This week, Monday, I had blurry vision for about 15 mins after waking up from my nap Monday. Today I had this weird striped snake with moving strips for about 10 or 15 minutes when I was putting the kids to bed, followed up by a couple of smaller, shorter time period artifacts, all over in about 30 mins. Couldn't fall asleep, lasted 'til 1am
.	Wed	5-Dec	Morn		0.30																										vit c, 500 mg
.			Eve			5.30	1.00	0.00	0.00	1.00	0.00	0.00	x	0.00	0.00	0.00	1.00	0.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	probiotics, antibiotics, weird ear stuff all day like pulsing. Also feeling sorta depressed -- bad news about chi combined with worry about tomorrow's physician appointment
.	Thurs	6-Dec	Morn		?																										heard about "epilepsy"; saw craniosacral therapist, resulting increase in neck range of motion	memory: in meeting with amy, I lost track of things (but knew it): I was consciously distracted by other thoughts about my life
.			Eve	??																											antibiotics, ??
.	Fri	7-Dec	Morn		0.50
.			Eve	7.00	0.50																										antibiotics


.	Sat	8-Dec	Morn		1.60																									probiotics; increased neck and back pain, flexibility reduced
.			Eve	7.50										1.00																antibiotics
.	Sun	9-Dec	Morn		0.90													1.00
.			Eve			1.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics; probiotics;
.	Mon	10-Dec	Morn
.			Eve	6.00		1.00	0.00	0.00	0.50	0.00	0.00	better :)	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics; probiotics; hearing seems to be better. Also slightly less back pain today. However, nauseous this morning and out of breath easily. Made it through today without a nap; headachy. Last two nights I was a terrible insomniac, hence trying the no napping thing. also had hot flashes for the second time all day today. maybe overdressed?
.	Tues	11-Dec	Morn																											no insomnia last night!
.			Eve																											antibiotics; probiotics
.	Wed	12-Dec	Morn
.			Eve	5.00																				1.00			1.00			antibiotics; probiotics insomnia, night sweats,
.	Thurs	13-Dec	Morn
.			Eve			1.00	0.00	1.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	1.00	1.00	1.00	0.00	0.00	0.00	0.00	1.00	0.00	0.00	0.00	0.00	0.00	0.00	antibiotics; probiotics
.	Fri	14-Dec	Morn
.			Eve	9.00
.	Sat	15-Dec	Morn
.			Eve
.	Sun	16-Dec	Morn
.			Eve
.	Mon	17-Dec	Morn
.			Eve


.	Tues	18-Dec	Morn
.			Eve
.	Wed	19-Dec	Morn
.			Eve	1.00	1.00		1.00	1.00			1.00		today worse than most of the earlier week (not documented) -- I believe because I got almost no sleep last night due to a combination of stupidity and the kids and taking a late nap by accident. The contrasts illustrates that in general things are getting better -- my lymph nodes were even shrinking until last night
.	Thurs	20-Dec	Morn
.			Eve	0.50	1.00	1.00			1.00	1.00	1.00	1.00	glands are down, and in the evening no less
.	Fri	21-Dec	Morn
.			Eve
.	Sat	22-Dec	Morn
.			Eve
.	Sun	23-Dec	Morn
.			Eve
.	Mon	24-Dec	Morn
.			Eve
.	Tues	25-Dec	Morn
.			Eve
.	Wed	26-Dec	Morn
.			Eve
.	Thurs	27-Dec	Morn
.			Eve

Fri

28-Dec

Morn

Eve

Sat

29-Dec

Morn

Eve

Sun

30-Dec

Morn

Eve